For generations, menopause wasn’t something people talked about openly. It was private, brushed aside, or treated as something you were expected to handle quietly.

Now, as menopause finally enters the cultural conversation, many women are realizing just how little they were told — and how unprepared they felt when it arrived.

To better understand that gap, ThisIsMenopause surveyed more than 2,000 women who are going through perimenopause or are postmenopausal. We asked participants what they wished they’d known before menopause began.

In our survey, most respondents said it took months — not days — to recognize that their symptoms were related to perimenopause. This highlights how unclear the transition has been for many.

The answers were raw, emotional, and deeply consistent. Together, they paint a picture of a life phase that affects the body, mind, work, relationships, and sense of self, often all at once.

Here are the top things women said they wish they — or the people around them — had known sooner.

Many respondents said they entered menopause expecting temperature changes and were blindsided by everything else. One woman shared that she wished she’d known this: “It’s more than just hot flashes.”

Others described brain fog, anxiety, sleep disruption, pain, mood changes, and exhaustion — symptoms that don’t always get talked about openly.

“It’s mentally draining,” said one respondent. Another wrote, “Literal hell. The hot flashes. The brain fog. The lack of sleep. The anxiety.”

Over and over, women described menopause as something that affects not only their physical and emotional well-being but all aspects of their lives, including career and relationships.

“It’s made not just me but my loved ones think I’m crazy. I’ve been to the mental health doctor. I’ve lost work, money, my relationships are failing,” one shared.

What Respondents Said About Menopause and Relationships

“I wish my husband could experience the symptoms so he would really understand.”

“Maybe my kids and I would have a relationship now if we knew what I was going through.”

Some talked about struggling to explain themselves to loved ones or feeling misunderstood at home. “I wish my husband could experience the symptoms so he would really understand,” a respondent shared.

Another reflected, “Maybe my kids and I would have a relationship now if we knew what I was going through.”

Many respondents also shared how menopause affected their ability to work. One described the difficulty of “being able to work while having a hot flash” while noting how menopause can “take you away from your A game, mentally.”

Compounding the work-related challenges, many respondents said they felt embarrassed asking employers for support or even scared it would cost them their jobs. “My employer would not understand, and they might just find someone younger to do my job,” one respondent shared.

Many respondents said they were unprepared for how deeply menopause could affect their mental health. “It’s hell on your mind and body,” one respondent said, “especially if it coexists with a mental health condition.”

Some described anxiety, depression, mood swings, and a sense of losing control. One wanted to make sure others knew this: “You’re not losing your mind. Your hormones are just taking over like a second puberty.”

One of the most repeated messages in the survey was how much menopause varies from person to person. “Everyone experiences different things,” one woman said.

Some felt they had symptoms more severe than those around them: “My symptoms seem to be much worse than anyone I have talked to about it.”

Others observed theirs were milder: “My symptoms are not bad like other people’s.”

Advice From Respondents

“Plan ahead, and be aware of symptoms to watch for.”

“[You] do not have to suffer. Treatments are effective and safe.”

Looking back, a large number of respondents said they wished they’d known more before symptoms started — or had taken them seriously sooner.

“Plan ahead, and be aware of symptoms to watch for,” one woman suggested.

Another said they’d wished they’d “known earlier that menopause is a gradual process.”

Some didn’t realize what was happening at all. “It can be very scary not knowing what is going on,” one said. “I thought I was just losing my mind until I talked to my gynecologist,” another shared.

Many people emphasized that menopause shouldn’t be something you just “push through.” One respondent wanted others to know that “they do not have to suffer, and treatments are effective and safe.”

At the same time, some shared frustration about feeling dismissed or not knowing where to turn. “Doctors don’t know a lot,” said one person. “Need to find someone that is well informed.”

Another commented, “It’s rough when your symptoms are not taken seriously.”